Description
Spondyloarthritis (SpA) is a group of inflammatory diseases that can cause long-term back pain and stiffness and typically begins in young adults (ages 20-40). It is our goal to collect survey data from people with SpA so that their voices can be heard and improvements can be made to their care.
Why It’s Important
There are a lot of different symptoms and outcomes associated with the SpA family of diseases that we are able to study because of the FORWARD SpA Registry. This study is important because there are still a lot of unanswered questions about how to best treat people with SpA, and to do that, the scientific community needs more data. Our hope is that, the more we learn about your experiences, the sooner we can answer some of those questions
Who Should Join?
People with any form of SpA are encouraged to join! Volunteering in this research means answering detailed surveys every six months. .
Putting Data to Work
The evolution of new therapies to treat SpA patients makes patient participation in this registry all the more important. We need to understand how effective and safe the treatments are in the daily lives of our patients.
Get Started
If you would like to add your story to those we have already collected, click the button below to get started:
Meet the Study Director
Dr. Alexis Ogdie is a clinician and research at the Perelman School of Medicine at the University of Pennsylvania. Her research is focused on inflammatory arthritis including spondyloarthritis (SpA), psoriatic arthritis (PsA), and rheumatoid arthritis (RA). The mission of her research program is to improve lives by getting better at diagnosing and treating these conditions.