Description
Psoriasis, sometimes thought to be nothing more than an annoying condition that can cause red or irritated patches of skin, can have a major impact on the day-to-day life of patients. Psoriasis can also lead to psoriatic arthritis, which can cause permanent joint damage.
Why It’s Important
Psoriasis and Psoriatic Arthritis affect millions of people. It is our goal to collect survey data from people with these conditions so that their voices can be heard and improvements can be made to their care.
Who Should Join?
Anyone can join the study so long as you have Psoriasis and/or Psoriatic Arthritis. You will answer monthly surveys as well as more detailed biannual surveys. Additionally, if you join, you will have the opportunity to receive compensation.
Putting Data to Work
This is a new and exciting initiative—over time the Psoriasis Registry will provide new insights into the patient experience living with psoriasis and will allow us to identify new strategies to help patients achieve better health outcomes.
Get Started
If you would like to add your story to those we have already collected, click the button below to get started on your consent form:
Meet the Study Director
Dr. Alexis Ogdie is a clinician and research at the Perelman School of Medicine at the University of Pennsylvania. Her research is focused on inflammatory arthritis including psoriasis, psoriatic arthritis (PsA), spondyloarthritis (SpA), and rheumatoid arthritis (RA). The mission of her research program is to improve lives by getting better at diagnosing and treating these conditions.