Description:
AiArthritis is led by people affected by autoimmune and autoinflammatory arthritis (AiArthritis) diseases.
Why It’s Important
We believe expedited diagnosis and access to early and effective therapy is vital to improve outcomes and increase rates of remission. The AiArthritis Research Database was established to address these issues by focusing on understanding symptoms, comorbidities, and individualized therapy responses, defining subgroups, and using data to drive public policy.
Who Should Join?
People with an autoinflammatory or autoimmune disorder, especially those with IgG4-Related Disease (IgG4-RD) are encouraged to join. Volunteering in this research means answering detailed biannual surveys. This study is important because everyone is undiagnosed before they are diagnosed.
Putting Data to Work
We need real world evidence to prove the immediate need for biomarker testing and precision medicine. The same holds true for data to drive public policy. Clinical trial data only considers the average patient model and is not representative of the real community. Even though it is incomplete, it’s still used and that results in laws and regulations that only benefit a portion of our community. The work we do will fill this gap and that’s exciting!
Get Started
If you would like to add your story to those we have already collected, click the button below to get started:
Meet the Study Director
Director of the AiArthritis Research Database. CEO of AiArthritis, aiarthritis.org.