Description:
AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) is led by people affected by autoimmune and autoinflammatory arthritis (AiArthritis) diseases.
Why It’s Important
We believe expedited diagnosis and access to early and effective therapy is vital to improve outcomes and increase rates of remission. The AiArthritis Research Database was established to address these issues by focusing on understanding symptoms, comorbidities, and individualized therapy responses, defining subgroups, and using data to drive research and public policy efforts.
Who Should Join?
People with an autoinflammatory or autoimmune arthritis disorders are encouraged to join. These studies are important for capturing data on early disease/undiagnosed disease because everyone is undiagnosed before they are diagnosed and to ensure research progresses in a way that can be personalized for those of us living with complex conditions.
Putting Data to Work
We need real world evidence to prove the immediate need for biomarker testing and precision medicine. The same holds true for data to drive public policy. Clinical trial data only considers the average patient model and is not representative of the real community. Even though it is incomplete, it’s still used and that results in laws and regulations that only benefit a portion of our community. The work we do will fill this gap and that’s exciting!
Get Started
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Meet the Study Director
Director of the AiArthritis Research Database. CEO of AiArthritis, aiarthritis.org.