Active Studies

FORWARD is a non-profit organization that has multiple active studies that are dedicated to improving the lives of people with different diseases / conditions. We build, maintain, and grow healthcare registries—databases that contain healthcare data on volunteer participants. These registries are largely targeted at autoimmune conditions. Currently, we curate and oversee the following:

FORWARD

FORWARD is the largest patient-reported research databank for rheumatic disorders in the United States. Started in 1999, our main registry is home to tens of thousands of participants spanning dozens of autoimmune conditions.

Lupus

The Lupus Study is part of the FORWARD Registry, has over 5,000 participants, and was started in 2002. This registry captures many of the different forms of lupus, including, but not limited to Systemic Lupus Erythematosus (SLE), Cutaneous Lupus, and Discoid Lupus.

Psoriasis/Psoriatic Arthritis

The Psoriasis Study is our newest and fastest-growing study made to help people who have psoriasis. It started in 2023 and its goal is to identify risk factors for the development of cardiovascular disease, diabetes, and psoriatic arthritis among patients with psoriasis. Visit the main Psoriasis Registry page to learn more.

Dupuytren

The Dupuytren Study is home to over 10,000+ participants with the sole purpose of finding a cure for Dupuytren’s Disease. This registry was started in 2020 with the Dupuytren Research Group, and together we use the data you give us to work to find and test medicines to fix the cause of Dupuytren disease and avoid procedures.

Spondyloarthritis

The Spondyloarthritis Databank is part of the FORWARD Registry, has over 4,000 participants, and was started in 2002. This registry captures many of the different forms of lupus, including, but not limited to Ankylosing Spondylitis, Psoriatic Arthritis, and Spondyloarthritis.

AiArthritis

The AiArthritis Research Database is part of the FORWARD Registry, and is launching in 2024 in collaboration with the patient advocacy group, AiArthritis. This registry captures the many autoimmune and autoinflammatory disorders that affect 350 million people across the world.